How'd it Go? Well I'll Tell You...
We’re back; I can’t believe we have to go through that every month!! They pretty much cried the whole time. The screamed and yelled NO!! During the insertion of the IV’s… It was so stressful. All I wanted to do was pick them up and run out of there.
They had their own room, with lots of nurses coming in and out; the doctor came in during the middle to check on them. We thought we’d be able to take them around more, but they didn’t want us leaving so they could monitor them closely.
All in all though they did well. Though they fussed and had some shaking they didn’t have any major reactions during it. It took about five hours start to finish, they came in and checked vitals every 10 minutes. They wouldn’t sleep even though they got benadril and Tylenol…To unfamiliar I guess. All the crying and trauma they seemed to have gone through was forgotten when they took the IV’s out at the end. They got right up and gave all the nurses a hug; they were back to their ornery selves. How quickly children move on.
The actual gammogloblin went in first and it made them fussing and gave Levi the chills and shakes when they increased the drip to fast, they had to back it down, but after that they flush it with saline solution and they started feeling better with that.
So stressful, so heartbreaking, it took all the restraint I could muster to not run them out of there when they were screaming.
They are as of this moment sleeping peacefully.
As for the adults, we’re still on nervous stress overload.
The next one is Feb. 15th. This once a month thing is a lot faster than you think!!
Thanks to you all for all your support and thoughts and prayers…
They had their own room, with lots of nurses coming in and out; the doctor came in during the middle to check on them. We thought we’d be able to take them around more, but they didn’t want us leaving so they could monitor them closely.
All in all though they did well. Though they fussed and had some shaking they didn’t have any major reactions during it. It took about five hours start to finish, they came in and checked vitals every 10 minutes. They wouldn’t sleep even though they got benadril and Tylenol…To unfamiliar I guess. All the crying and trauma they seemed to have gone through was forgotten when they took the IV’s out at the end. They got right up and gave all the nurses a hug; they were back to their ornery selves. How quickly children move on.
The actual gammogloblin went in first and it made them fussing and gave Levi the chills and shakes when they increased the drip to fast, they had to back it down, but after that they flush it with saline solution and they started feeling better with that.
So stressful, so heartbreaking, it took all the restraint I could muster to not run them out of there when they were screaming.
They are as of this moment sleeping peacefully.
As for the adults, we’re still on nervous stress overload.
The next one is Feb. 15th. This once a month thing is a lot faster than you think!!
Thanks to you all for all your support and thoughts and prayers…
posted by Kate Michele at 7:34 PM
15 Comments:
Oh I'm so glad it went pretty well today.
This is good news Katie! Maybe they're going to do alright and once they get in the routine of it all, maybe it'll be ok and they will calm down to rest during it. 5 hours is alot of time to sit and worry...
That was so sweet they hugged the nurses...such good boys!
Keep your chin up Katie....1 down...how many more to go?
It may sound trite, but maybe the worst is behind them. It's energy-draining, I know, but at least the first one is done.
Glad to hear it went ok, although it must be so stressful. You are a very strong woman and your little boys sound like brave and wonderful kids. All the best to you all. Hang in there.
Everything will be ok in the end- if it's not ok, it's not the end. :-)
Kimmy: Well if they handel them alright they could be getting them until they're 4 or 5.... they're 2 1/2 now @ once a month....Hmmmm too many for me to calculate in my tired brain!!! Yes it was way cute when they hugged the nurses and told everyone thanks and good bye!!
Anthony: Yes they said the first is always the worst cause you don't know what to expect. That's true about alot of things really...
Bettina: Thanks...and yes that is so true..
i cannot even imagine 5 hours of that...when the girl one was like 8 months old hey had to get a sample of her blood and the techs were HORRIBLE- they missed the vein like 3 times, i was so mad...she was screaming and all i wanted to do was take that needle and stab THEM with it...
hopefully as the sessions progress, the boys will "get used" to it.
prayers sent your way.
<33
I am glad that they are doing better. I remember having to get a shot of gammaglobulin when I was a kid and that stuff was thick...I was the only one of us kids that didn't cry because my mom had promised us that we could play in the park afterwards if we didn't cry and I took her seriously.
You are such a good Mom, I cannot even imagine how difficult this must have been for you.
I do know that Kids are ALOT tougher than we are and tougher than we think they are. Am I right?
They do bounce back so quickly,Because they only see the little picture and I believe that by the time this is over and they have received all their treatments, they will just think that it was a small price to pay for their precious futures !
You on the other hand may be quite weary by then. So I pray that it does not break you, but makes you stronger and more committed than ever to see them through !
Peace to you today my dear friend .
I'm glad you made it through the first one relatively unscathed! I'm sure it will get easier as time goes on. And think how excited they will be when they can go to preschool and the park and all the things they can't do yet. It will be worth it, I'm sure of it!
Praying for you, via KimmyK, chicky. I know your pain and anxiety. No one ever wants their babies to hurt.
I'm so glad they got thru the first one okay. I'll be thinking of you in February.
Glad everything went somewhat well for them. Maybe thigns will get easier for you as well as they progress. I'll keep thinking good thoughts for you and the boys.
they are little troopers and their mom is a very strong girl
hopefully it won't be as bad next time
i feaked when i took the twins for their 4 year check up (by myself) and they each had to have 5 immunizations
Visiting from Kimmy's site.
I saw a Discovery Channel special 2 nights ago (mystery diagnosis it was called) about a boy who had a similar immune system deficiency. He goes every 2 weeks for a treatment- probably since about 5 years old. He's a teenager and says he's a totally different person and they couldn't have thanked the dr's more and the treatment pretty much saved his life.
I think you're making the best decisions you know how as parents, and of course I am new so I don't know all about you, but from what I read.
Good luck - I hope it goes a bit better next time. I think as time goes on it will become more routine and hopefully get a bit easier for them : )
take care.
shelli
Congrats that you got through it all and hugs to your brave wee boys. I know a little girl here who was diagnosed with a brain tumour when she was three and had the most unbelievably rigorous treatment to heal it and she is now about 8 yrs old and doing fine and she is just a happy wee thing and doesn't remember anything about her treatment when she was little. In a way the younger, the better and I think it will improve as they know what to expect. And for Mum and Dad too. God bless.
i somehow lost your link - and you were deleted from my bloglines! sorry i've missed so much!
i can't even imagine. bebe screams when he sees the stethoscope coming at him! i'm so sorry that this is so difficult and scary for all of you! hopefully, it will get better after a few visits and hoefully they won't have to do this long.
thinking of you all!!!
I like a lot of gross things but needles just creep me out. Glad to hear they are doing better.
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